The ugly affects of MF diseases

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huntingonthebluffs
Posts: 338
Joined: Wed Feb 24, 2016 12:00 am

The ugly affects of MF diseases

Post by huntingonthebluffs »

I always find these write-ups and reports about the MPN diseases of value in understanding the challenges of dealing, surviving, treating and coping, etc. as both a patient and caregiver.

I hope while we have this down time before earnings and as organizational changes are being implemented some will take a look at these articles. Especially if you haven't had a family member go through all the ugly stages of pain and bodily dysfunction / distress. And while one might live 2 or 3 or 5 years, they are not very good years. These are terrible diseases with no medical cure other than a possible/ risky SCT. I am always able to pick up a couple things that reinforce how important it is for us to support and invest in the efforts to find cures.

https://www.patientpower.info/myeloprol ... plications

https://www.patientpower.info/myeloprol ... id=6486006

More is being understood on a regular basis but unfortunately drug discovery and getting through the approval processes is still in the stone age. Maybe AI can help but the politics and unscrupulous competition continues to be the overwhelming issue in my opinion. Rather than helping accelerate innovation the powers to be seem to be against better drugs, health and longevity.

How anyone could bash or lie or malign or abuse the incredible efforts of biotechs like Geron attempting to address these diseases is beyond my comprehension. Maybe if they or their family members were suffering from these diseases they would understand and see things differently. At times like this, it makes one wonder what it would take.
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