A blessing from the hepatologists Major hat tip to Wildrides YMB

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Ryan
Posts: 353
Joined: Sat Jul 08, 2017 1:41 pm

Re: A blessing from the hepatologists Major hat tip to Wildrides YMB

Post by Ryan » Tue Feb 27, 2024 4:42 am

Wow, when somebody writes “my life depends on it”, it gives you pause and makes you realize the gravity of this decision. Two units every 7-10 days, that’s difficult. I also imagine s/he does not feel great by day 6 after infusion.

The fact that the Doctor was so bold as to tell her/his patient about a drug he cannot have… makes me realize the conviction that particular doctor feels.
Last edited by Ryan on Tue Feb 27, 2024 5:10 am, edited 1 time in total.

Ryan
Posts: 353
Joined: Sat Jul 08, 2017 1:41 pm

Re: A blessing from the hepatologists Major hat tip to Wildrides YMB

Post by Ryan » Tue Feb 27, 2024 4:48 am

The Anonymous patient from Leipzig Hospital (Germany) submission is also worth an eye-opening read. Excited.

biopearl123
Posts: 1670
Joined: Fri Jul 20, 2018 5:13 pm

Re: A blessing from the hepatologists Major hat tip to Wildrides YMB

Post by biopearl123 » Tue Feb 27, 2024 6:06 am

Ryan, are you surprised? I think this is the tip of the iceberg.

kmall
Posts: 756
Joined: Thu Mar 21, 2019 3:57 pm

Re: A blessing from the hepatologists Major hat tip to Wildrides YMB

Post by kmall » Tue Feb 27, 2024 12:53 pm

Probably one of the best digs in a very long time. Thank you Wildrides over on YMB!

I agree Ryan that the anonymous letter from the MDS patient in Leipzig is quite impressive:

"......since December 2021 I have been transfusion-free with very good blood values. This is a remarkable improvement in my quality of life."

26 months of TI and counting along with QOL is an incredible testimony for what patients are seeking in treatment. Hopefully we see more testimonials like this as we approach ADCOM March 14. -Kmall

mistergern
Posts: 70
Joined: Sat Mar 19, 2016 3:48 pm

Re: A blessing from the hepatologists Major hat tip to Wildrides YMB

Post by mistergern » Tue Feb 27, 2024 4:56 pm

Wildrides has given us the best first-hand information since IrishTrader (bless her soul). Thanks, Wildrides !!

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