Geron’s social media efforts to support enrollment in CTs
Posted: Mon Jul 26, 2021 8:55 pm
FWIW, I may not be seeing all Geron's efforts but it does not appear to me that Geron is as aggressively promoting Imetelstat or related CTs via social media as I thought they would. I expected much wider/deeper efforts especially with the pandemic enrollment issues, etc. Given I’m not particularly social media savvy, maybe I’m just not seeing that much of it. What little time I spend on Facebook for example, I see one MDS post but considerably more info on competitive studies. Assuming you don’t know much or anything about Imetelstat and maybe go to a link with CT information one has to be able to discern between the studies. But even then, if one goes to the NCI website and somehow arrive at this link:
www.cancer.gov/about-cancer/treatment/c ... als/search
and type in “lower-risk myelodysplastic syndromes” you will get a list of 6 clinical studies, none of which are for Imetelstat’s phase 3 CT. If you type in Imetelstat, you will get the Geron trials but you have to know Imetelstat first. If you type in “Intermediate-2 or High-Risk Myelofibrosis” you will get a list of 12 trials, one of which is the Geron MF P3 study which you would need to select out of the sizeable list.
If you go to the NIH site:
www.clinicaltrials.gov
and again type in “lower-risk myelodysplastic syndromes” for CTs you will get a list of 7 clinical studies, none of which are for Imetelstat’s phase 3 CT. If you type in “Intermediate-2 or High-Risk Myelofibrosis” you will get a list of 2 trials, one of which is the Geron MF P3 study.
Just seems this might be a little light based on what’s at stake, i.e. just not competitive with the competitions’ efforts. Would one think they should highlight it in more ways with some bright lights etc. versus making less knowledgeable patients find a needle in the haystack? Or am I missing their efforts, just over reacting or maybe there is no cause for concern as they know studies are filling nicely?
Anyway, besides trying to do research on NCI, NIH, ASH, EHA, MPN, Geron’s website, here is what I’ve seen via “social media” that would catch one’s eye:
MDS
https://imerge-phi.researchstudytrials. ... qD4zUjyDKI
https://www.aamds.org/treatments/clinic ... s-ipss-low
MF
https://patientpower.info/will-imetelst ... Qh9bgD3YWg
Anyone see any other social media links out there with promotional information from Geron on Imetelstat, the CTs, etc.
www.cancer.gov/about-cancer/treatment/c ... als/search
and type in “lower-risk myelodysplastic syndromes” you will get a list of 6 clinical studies, none of which are for Imetelstat’s phase 3 CT. If you type in Imetelstat, you will get the Geron trials but you have to know Imetelstat first. If you type in “Intermediate-2 or High-Risk Myelofibrosis” you will get a list of 12 trials, one of which is the Geron MF P3 study which you would need to select out of the sizeable list.
If you go to the NIH site:
www.clinicaltrials.gov
and again type in “lower-risk myelodysplastic syndromes” for CTs you will get a list of 7 clinical studies, none of which are for Imetelstat’s phase 3 CT. If you type in “Intermediate-2 or High-Risk Myelofibrosis” you will get a list of 2 trials, one of which is the Geron MF P3 study.
Just seems this might be a little light based on what’s at stake, i.e. just not competitive with the competitions’ efforts. Would one think they should highlight it in more ways with some bright lights etc. versus making less knowledgeable patients find a needle in the haystack? Or am I missing their efforts, just over reacting or maybe there is no cause for concern as they know studies are filling nicely?
Anyway, besides trying to do research on NCI, NIH, ASH, EHA, MPN, Geron’s website, here is what I’ve seen via “social media” that would catch one’s eye:
MDS
https://imerge-phi.researchstudytrials. ... qD4zUjyDKI
https://www.aamds.org/treatments/clinic ... s-ipss-low
MF
https://patientpower.info/will-imetelst ... Qh9bgD3YWg
Anyone see any other social media links out there with promotional information from Geron on Imetelstat, the CTs, etc.